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Local raises TSC global awareness

July 10, 2014

Shane Kinard Sr. walks alongside his daughters (from left), Kristen and Gracie and his wife, Merry Wednesday on Main Street in Starkville wearing their shirts from the 2014 TSC World Conference in Washington, D.C. Shane and Kristen suffer from Tuberous Sclerosis Complex, a rare genetic disease. Shane raises awareness for the condition through his Facebook page, “TheVoices of Tuberous Scleriosis.” (Photo by Alex Holloway, SDN) (Photo by Alex Holloway, SDN)

One Starkville family’s struggle against a rare, life-threatening disease has helped create a way for those who suffer from it around the world draw nearer to each other through social networking.

Shane Kinard Sr. and his daughter, Kristen, suffer from Tuberous Sclerosis Complex (TSC), genetic disease that can cause a number of very serious complications, including tumors, developmental delay, skin abnormalities and seizures. TSC is a known linchpin disease, because a number of other conditions can arise from its complications, such as epilepsy, autism and cancer.

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